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NUMB IN THE MEDIA



 

 

Media Release for NUMB - September 2006

As parliamentary support grows for keeping incarcerated women and their babies together, there is still one group of mothers denied the right to stay with their babies; mothers of premature babies.  A group of mothers is lobbying the government for mothers and babies to have the same right: to be allowed to stay together. The vast majority of mothers of premature and sick newborns find themselves discharged from hospital after what may have been a frightening and untimely end to their pregnancy, and relegated to the status of visitor. This enforced separation may continue for weeks or even months. This isn’t true for any other hospitalised child who can have Mum or Dad stay at their bedside.  In fact if asked, most parents would say, “Of course I would be there! No one could keep me away.”  This option for parents to stay with their hospitalised children is only a recent development in New Zealand history.  In the 1950’s parents were only allowed to visit for one hour on a Sunday.

By contrast, women with babies in a neonatal intensive care unit (NICU) are often persuaded to leave their baby in the care of staff and go home.  Routinely staying overnight is rarely an option, until just before the baby is due to be discharged. This separation of a newborn from his or her mother would be unacceptable in the general community. It is well known that space in NICUs is at a premium. A recent Ministry of Health review of neonatal intensive care services confirmed that New Zealand hospitals are almost 20 beds short of the minimum number of level-three cots needed. However mothers are not asking for much.  A recliner chair beside the incubator or cot, and a breast pump, is all mothers need. Even with the high level of technical intervention needed for these sick babies, the mother has an invaluable contribution to make to her baby’s well being. This contribution recognizes her unique and irreplaceable role as the mother, not merely a visitor. Research confirms that babies’ heart-beat and temperature remain much more stable when they receive mother care and they tend to gain weight faster and go home quicker.

NUMB (Neonatal Unity for Mothers and Babies) is campaigning for mothers to be able to choose to stay with their baby or babies in the NICU.  NUMB distributed a petition asking the government to provide rooming-in facilities for mothers of babies in NICUs, in 2005 and got over 2500 signatures, which were presented to parliament in February this year.  In April, NUMB presented a submission to the Health Select Committee and is currently awaiting a response. NUMB has a website at www.numb.net.nz which has information and articles about the effects of mother baby separation, the benefits of Kangaroo mother care, and tips and suggestions for surviving the NICU, for parents and supporters. 

 

New mother slept in waiting room to be at baby's side
By Candice Reed,
Thursday, 17 August 2006

from: 
http://www.times.co.nz/cms/news/2006/08/art100012791.php

When new mother Donna Booth was told to leave her baby at hospital and go home, she refused and spent sleepless nights on waiting room couches. Four years later, Mrs Booth is a strong voice for the Neonatal Unity for Mothers and Babies (NUMB) campaign for neonatal units to provide accommodation  for mothers. The thought of leaving seven-week premature daughter Sarah – her third child - in Waikato Hospital for nearly a month scared Mrs Booth. “I’ve never been apart from my children,” says Mrs Booth.  “My children have been in hospital before, but I’ve never been told I had to leave them alone. All of a sudden this was vastly different. I was a breastfeeding mum who needed to be with her child, but I wasn’t allowed. I was told I could not stay and only be there during visiting hours.” If Sarah could speak, Mrs Booth is adamant she would have asked for mum. “It was really traumatic,” she says. “I couldn’t believe it, I was not prepared to be told I was discharged from hospital and should go home without my baby.”

Auckland mother and NUMB supporter Letticia Mincham faced a similar battle at National Women’s with her six-week premature son, Edward. “I fought tooth and nail to stay with my son,” says Mrs Mincham. “From that I got an extra few days, but not much.” Over three weeks Mrs Mincham stayed five nights at the hospital. For the remainder she travelled from her west Auckland home to the city arriving at 6am, was met by her husband at 6pm and left at 9.30pm. Some nights she stayed, moving between chairs to avoid hospital staff. “It was horrible. The whole concept seemed stupid and odd to me,” she says. “I had a baby I was desperately trying to get to know and hopefully breastfeed. It wasn’t right to leave.”  Mrs Mincham battled with a natural instinct to be with her child and logistical problems of daily travel. She says once allowed to be near her child she lost all self-confidence to be a mother. “It’s a funny feeling. I approached a baby I didn’t think I could touch,” she says. “So many other people had been looking after my baby that I lost confidence.
“All I wanted was a bunk, I didn’t think that was too much to ask.”

 

Home away from home at Kidz First
By Candice Reed, Thursday, 17 August 2006
from:  http://www.times.co.nz/cms/news/2006/08/art100012790.php

Middlemore's Kidz First Neonatal Unit is leading the way in providing home away from home accommodation for family members of sick babies. Since the opening of the new unit in February, families have taken advantage of two double private rooms with bathroom.
Middlemore is among a few hospitals nationwide offering the service and supports a Neonatal Unity for Mothers and Babies (NUMB) campaign for more health entities to do the same.

In February, NUMB presented more than 2500 signatures to parliament supporting its call for ‘rooming-in facilities’ to be built in hospital neonatal intensive care units (NICUs). The group waits for a response to a submission to the Health Select Committee in April. NUMB spokesperson Jessica Haussmann says many mothers of premature and sick babies are discharged from hospital before the child is, causing emotional and physical fatigue. “Mother’s need constant contact with their babies. It makes such a difference to how someone will cope when they finally get home,” says Ms Haussmann. “I’ve seen first hand the affects this has. It’s harder for women to get to know their baby if they aren’t allowed to be around them and that’s a vitally important factor of parenthood.”

NUMB is stepping up the campaign by calling for more supporters to help lobby MPs.  A recent Health Ministry review of NICU showed  hospitals are almost 20 beds short of the minimum number of level-three cots needed. “Hospital space is premium, we understand that, but we’ll take anything. We don’t care if it’s a lazy-boy beside the incubator,” says Mrs Haussmann.

Kidz First Neonatal Unit nurse manager Helen McConachy says her unit is fortunate to have the accommodation.  Before the move, off site accommodation could be arranged, but on-site rooms offer greater peace of mind for family. “The rooms are for neonatals that are really sick. We only have two rooms and obviously can’t provide room for everyone,” says Mrs McConachy.  “Having a baby is the most important and stressful time in a parent’s life.  “To have a sick baby only compounds that. It’s important parents are able to stay and have that choice.” The extra time allows parents to bond with a child and rest for new mothers. “Mums need to look after themselves, to be able to look after their baby. Having dad by her side is added support,” adds Mrs McConachy.  “We know it’s important not to split that support up.”

 

Numb mums fight to stay with prem babies

Waikato Times - 10th April 2007

A group of Hamilton women is fighting for the rights of mothers to stay with their premature babies while they remain in neonatal care.

The women presented a submission to the parliamentary health select committee via video link yesterday after making a stand last year.  Neonatal Unity for Mothers and Babies, or Numb as the group is known, has been lobbying the Government for a change in "normal" hospital procedure to allow mothers to stay in the same room as their sick or premature baby, while in neonatal intensive-care units.  The women sent a 2500-signature petition to Parliament last year and were asked to make a submission on the topic, which they did.

Member Donna Booth said the submission was supported by letters from midwives, the NZ College of Midwives, an obstetrician, the Forward Up Foundation and the La Leche League New Zealand breastfeeding organisation, as well as referenced research.  Finally, last week the group were contacted by the health select committee asking them to give the presentation.

Mrs Booth said Numb hoped yesterday's presentation would result in progress on the request.  "We've been quite reasonable - we're asking the Government to look into it quite specifically with tasks in mind."  She said the group was also asking the Government to make provision initially for women to be able to room-in if they want to.  "We want women to be able to choose to do that - for those blocks to be removed."

Now and in the past women who gave birth to a premature or sick baby who remains in the NICU cannot stay with the child outside hospital visiting hours, as can parents of sick children in other wards.  "The vast majority of mothers of premature and sick newborns find themselves discharged from hospital after what may have been a frightening and untimely end to their pregnancy, and relegated to the status of visitor," Mrs Booth said.  Mrs Booth, whose daughter Sarah was born seven weeks premature in 2002, said being told to go home and leave her newborn baby was soul-destroying.

"It was a very, very challenging experience. I had two other older children at home so I understood as a parent how vitally important being with my baby was."  The select committee will now decide whether to recommend action to Parliament. If it does, the Government will have 90 days to report on what action, if any, was taken to implement the recommendation.

 

Midwife hopes to help prem babies with pedal power
North Waikato News - 7th March 2007

 

Close encounters

by Linley Boniface  (NZ Listener, May 24-30 2008 Vol 213 No 3550)
from: 
http://www.listener.co.nz/issue/3550/columnists/11125/printable/close_encounters_.html

Kangaroo mothercare is cheaper than incubators and benefits can include a healthy baby who goes home earlier. Watching their premature baby through an incubator didn’t appeal to Krista Fullerton and Forrest Chambers. Instead, the Palmerston North couple decided to use their own bodies as incubators, keeping little Anaďs warm through direct contact with their skin. Fullerton and Chambers used a technique known as kangaroo mother-care, or KMC, which was developed in Colombia in 1978 to deal with overcrowding in neonatal units. In the West, it has been popularised by a South African public health physician, Dr Nils Bergman. KMC involves 24-hour skin-to-skin contact and exclusive feeding with mother’s milk, usually by breastfeeding. Any medical treatment the baby needs is delivered while it lies on its mother.

Although most new parents have no advance warning of a premature delivery, Fullerton and Chambers knew their third child would be born early. Fullerton’s waters broke at 32 weeks, and they had time to research KMC before Anaďs was born six weeks early. But putting KMC into practice wasn’t easy. In the fortnight following the birth, Fullerton stayed in the neonatal unit holding Anaďs against her skin while sitting on a -semi-reclining vinyl armchair (“very sweaty,” she remarks). Chambers would take her place while Fullerton expressed milk or fetched meals from the hospital cafeteria. The practicalities of staying in the unit were difficult, and Fullerton and Chambers had mixed reactions from staff in the neonatal unit – they believe some staff felt threatened that they’d taken over responsibility for Anaďs’ care. But Anaďs thrived, and was allowed to go home at 13 days. In retrospect, Fullerton and Chambers wish they had spent more time briefing hospital staff in advance about KMC. Staff encouraged parents to come in and cuddle their babies, but weren’t used to having parents live in. “The care itself wasn’t hard – premature babies sleep a lot, so I was often able to pick up a book or just lie there and look at her,” says Fullerton.

Donna Booth had never heard of KMC when her third child was born seven weeks early in 2002, but instinctively felt she didn’t want to leave her. Booth ended up sleeping on a hospital couch for a fortnight so she could keep Sarah with her as much as possible. “The hospital finally agreed I could sleep on the couch on the condition that I did it secretly, because they said if the other mothers saw me they’d want the couch, too,” says Booth. “Some of the staff were supportive, but in an underground way. I wasn’t entitled to free food from the hospital, even though my baby was an inpatient, but some of the staff who were bringing in food for themselves would make some extra for me.” After hearing about KMC, Booth co-founded the group Neonatal Unity for Mothers and Babies. NUMB believes mothers should have the same right to stay in hospital with a premature baby as they would with a full-term baby or a child in a paediatric ward. Booth says there’s a world of difference between neonatal units encouraging -parents to visit their premature babies and those allowing them to live in to provide the care themselves. “Hospitals get hung up on the idea that they don’t have enough space, but all mothers need are a reclining chair and a power point to plug in a breast pump. And there are savings: kangaroo mother-care is cheaper than incubators, and babies usually go home sooner.” Several research projects have concluded that KMC helps babies’ oxygenation, heart rate, nutrition, ability to breastfeed, and immune system development.

A study by Canadian researchers published earlier this year also found that babies held against their mother’s bare skin recovered more quickly from the pain of -injections. The World Health Organisation’s view is that “almost two decades of implementation and research have made it clear that KMC is more than an alternative to incubator care. It has been shown to be effective for thermal control, breastfeeding and bonding in all newborn infants, irrespective of setting, weight, gestational age and clinical conditions.” Fullerton believes kangaroo mothercare should be more widely known, and would like parents who choose to use KMC to be given the support they need to stay in neonatal units until their babies are ready to come home. Eighteen months after Anaďs’ birth, Fullerton says she has very happy memories of her first two weeks with her daughter. “I felt really bonded to Anaďs, and it was a privilege to be able to care for her. It was an amazingly special time for both of us.”


 

           

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